This page, though not comprehensive,  consists of some useful links for facilities, organizations, services, and professionals with which I have some personal experience. As my site grows, my circle of connections expands, etc. I will update and continue to add to the information below. If you have any feedback, questions, or suggestions, please visit the contact page and let me know. 

 
 

National Support Organizations

This is a great way to get involved, get connected with other brain tumor patients, caregivers, and advocates. I am a volunteer and Greater New Haven (CT) Brain Tumor Ambassador.  I am looking forward to developing a lasting connection and contribute in some way to alleviate the fear of someone dealing with a brain tumor diagnosis. 

 
 
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Connecticut Support Organizations, Facilities & Services

Support Organizations

Connecticut Brain Tumor Alliance

Hospitals

Rehabilitation

Absolutely an amazing facility with a dedicated, competent, and caring staff. I was treated with dignity at all times and I would highly recommend this as you consider rehab facilities either for yourself or a loved one. Having referred many patients here, it was not until I was a patient here myself that I realized what an invaluable asset it is during one's road to recovery.

  • V.I.S.I.O.N Rehabilitation at Quinnipiac University

    • http://www.quinnipiac.edu/institutes-and-centers/center-for-interprofessional-healthcare-education/vision-rehabilitation/

      • I cannot compliment this organization enough. It is designed to provide continuation of outpatient therapy for uninsured patients including those who are insured but have reached their rehabilitation coverage maximum for the year. At a time when I was not working and no longer had allowable therapy coverage, I found this group and I am so grateful. You are seen by Quinnipiac OT and PT students and your visit is overseen by a licensed instructor who is either an OT or PT. I found the visits with the students extremely professional, therapeutic, and safe. I was actually disappointed to leave!

If you do not live near Quinnipiac University medical campus in North Haven, CT then ask your physician or therapist if they can recommend any centers which provide free therapy as a part of an instructional program. Please share any information you have with me as well so that I can add it on this page as a reference for others. 

  • STAR Physical Therapy & Sports Rehabilitation

    • http://www.ct-ortho.com/physical_therapy.asp

      • A great facility with dedicated, professional, and personable therapists. I am currently a patient with them after I developed significant, debilitating pain with overuse of my stronger side and of my affected shoulder. Since starting therapy here, I have increased endurance and less pain. Highly recommend for anyone dealing with pain or disability.

Fitness & Recreation

  • My experience with #AchieveFitness: I started my fitness journey here in July 2017 and from a mobility, strength, and pain perspective, I see improvement. I have had family, friends, and colleagues comment on my increasing speed in walking and seeing patients in the clinic.

  • As someone with painful hemiparesis, who was initially weary of working with a non-allied health professional outside of a medical facility, I have found my experience here to be rewarding and essential. I have worked with both owner Claudio Boni and trainer Chris Barone. I want to face the continued challenges my brain tumor journey has presented me with, with strength and confidence and I believe I can achieve this here. I share their facility on here because I hope anyone on a similar journey of recovery too can feel this way.

http://achievefitnesspersonaltraining.com/

  • Chapter 126: Sports & Fitness, An Oak Hill Center

    •  New England's first sports and fitness designed specifically for adaptive athletes and individuals with disabilities. Monday to Friday 8AM - 9PM, Saturday 9AM - 3PM, Sunday closed. The facility is open to all people, designed specifically for people with disabilities, their caregivers, and their families. According to the facility's brochure, the cost ranges from $10 individual/ $25 family a day to $648 individual/$918 family a year with a one time joining fee $25. Included in full facility Membership Benefits are fitness orientation, customized exercise program, group exercise classes, drop in recreation sports, and reduced program fees.

    • Additional information: www.chapter126.com 

Transportation

  • MyRide (American's with Disability Act, ADA)

    • If you or someone you know has become disabled and will need transportation services either to rehab, doctor's offices/ hospital, errands then you should consider MyRide if you live in the Greater New Haven Area. They provide door to door services if disabled or outside of a certain distance from a bus route for a very reasonable fee.

I found them extremely useful and I am grateful this resource was available. Here is the link: 

Uber Driving Services:

  • Per their company page:

    • Uber is evolving the way the world moves. By seamlessly connecting riders to drivers through our apps, we make cities more accessible, opening up more possibilities for riders and more business for drivers. From our founding in 2009 to our launches in hundreds of cities today, Uber's rapidly expanding global presence continues to bring people and their cities closer.

               Uber CT: https://www.uber.com/cities/connecticut  

Driving Assessment

If you or someone you know has become recently disabled and would like to start driving again, then a re-evaluation would likely be needed. In CT, there are a few private organizations whom you could contact, but use caution as there can be significant out of pocket expense if insurance does not cover for the evaluation which ranges around $500 and up. The cost of adaptive equipment deemed necessary by the evaluation would then be an additional cost. However, the advantage of such organizations is that you can potentially be seen much quicker. 

Another option is to go through the Department of Motor Vehicles (DMV) and Bureau of Rehabilitation Services (BRS) and apply for their Driver Training Program (DTP). This process involves contacting the Medical Records Office at DMV and requesting paperwork to submit to BRS. Many if not all of the forms can be downloaded from the DMV website. These include an eye exam, neurologist/neurosurgeon note of approval and or acknowledgement that you have no serious limitations which prevent you from safely operating a motor vehicle, and then the note of any referring physician. Once completed, send the aforementioned forms back to DMV for review. They will then forward them to BRS. After they assess the forms, you get a phone call from a DMV instructor to schedule a road test or driving test. At this point it is determined if you pass or fail and if you fail, you are referred to a testing center for more specific assistance/ detailed evaluation. 

 Here are the links: